Data Sharing

Articles and education about sharing your health cares with different medical providers.

Should I worry about giving my DNA to labs that do genetic tests?

Nathan E Botts 0 23811 Article rating: 5.0

With an October 2023 update due to the 23andMe breach

The internet has made DNA testing a big global business. In the United States and Europe, millions of people have sent samples of their saliva to commercial labs in the hopes of learning something new about their personal health or lineage. Ancestry.com, 23andMe, MyHeritage, and FamilyTreeDNA are all industry leaders that sell their services online, share test results on websites, and even provide guides on how to find relatives in phone directories or share results on social media. They frequently claim ownership of your genetic information and sell access to their databases to large pharmaceutical and medical technology firms.

Consumer Interest in Sharing and Accessing Digital Health Data

Nathan E Botts 0 3272 Article rating: 5.0

An issue brief from the Pew Trust Foundation

According to a survey from The Pew Charitable Trusts, 81%t of adults surveyed favor improved patient and provider access to health information. More than two-thirds of consumers want their clinicians to share health information that isn't presently required by federal data-sharing policies (Trust, 2021).

Assessment of the Data Sharing and Privacy Practices of Smartphone Apps for Depression and Smoking Cessation

Nathan E Botts 0 23126 Article rating: 5.0

An article from the JAMA Open Network

An article posted in the Journal of the American Medical Association identified that some of the highest-ranking health apps used to assist people with mental health conditions (e.g. depression) and smoking cessation were sharing data with Facebook and Google services and that only a third disclosed such practices.

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