An issue brief from the Pew Trust Foundation
According to a survey from The Pew Charitable Trusts, 81%t of adults surveyed favor improved patient and provider access to health information. More than two-thirds of consumers want their clinicians to share health information that isn't presently required by federal data-sharing policies (Trust, 2021).
An article from the JAMA Open Network
An article posted in the Journal of the American Medical Association identified that some of the highest-ranking health apps used to assist people with mental health conditions (e.g. depression) and smoking cessation were sharing data with Facebook and Google services and that only a third disclosed such practices.
Guidance from the Office for Civil Rights on your right to access your health records
From the HHS Office for Civil Rights website: Ask your doctor. You have the right to see and get copies of your health information - PDF. In most cases, you can get a copy the way you want it, such as by e-mail. While your doctor normally has up to 30 days to provide you a copy of your information, your doctor often can provide the information much sooner than that. If your doctor offers a web portal, you may be able to easily view and download your health information whenever you want.