X

 

 

 

 

 

 

WE’RE HERE TO HELP YOU MANAGE & LEVERAGE YOUR PERSONAL HEALTH DATA
Plain and simple. The personal health data you store in your Health e-Profile is yours. We won't sell it, look at it, or ask you about it unless YOU want us to help you put your data to work for you. Health e-Profile is your service for storing and managing ALL of your personal health data.

 

 

Lifecycle of a Health App/Device



Personal Health Data News
How do you control where your DNA data resides and how it is shared online?

How do you control where your DNA data resides and how it is shared online?

An assessment of the article from Bloomberg

Subjective:

It is the assessment from this article that at this time it is very difficult to understand and control who has access to your genetic data. There are not enough privacy protections in relation to what companies who analyze your genetic data are then able to do with that data after they have gathered it.

Objective: 

Currently the primary legislation that helps to protect consumer's privacy in relation to their genetic data is called the Genetic Information Nondiscrimination Act.

Assessment:

One of the key concerns for consumers is whether insurance companies and related payers might potentially get access to that information and be able to increase premiums based on possible risk factors identified within someone's genetic code. 

This article at Kaiser Health News seems to indicate that there are some real concerns that we should be aware of: "In general, long-term-care insurers can indeed use genetic test results when they decide whether to offer you coverage. The federal Genetic Information Nondiscrimination Act prohibits health insurers from asking for or using your genetic information to make decisions about whether to sell you health insurance or how much to charge. But those rules don’t apply to long-term-care, life or disability insurance.

When you apply for long-term-care insurance, the insurer may review your medical records and ask you questions about your health history and that of your family. It’s all part of the underwriting process to determine whether to offer you a policy and how much to charge."

Plan:

Before participating in Direct to Consumer Genetic Testing be sure to read that company's policies about who they might potentially share that data with beyond you.

Examples of these types of companies include:

  • 23andMe
  • Counsyl
  • Gene by Gene
  • Laboratory Corporation of America
  • MyMedLab
  • Mapmygenome India
  • Positive Bioscience
  • Quest Diagnostics, Inc

 

Previous Article Is It Legal to Record Your Visit with the Doctor?
Next Article OCR Guidance on Ensuring Equal Access to Emergency Services During Hurricane Florence
Print
19811 Rate this article:
5.0

Documents to download

  • GINAhelp(.pdf, 233.56 KB) - 892 download(s)

Please login or register to post comments.
About Us

Health eProfile team members have been at the forefront of developing tools to engage a broad community of patients and people to successfully access, store, and manage their personal health information.

We are dedicated to providing you with a safe and empowering service for storing and exchanging all of your health data.

More Information
PGD Trending
Contact

If you have any questions, please e-mail us without hesitation. We will reply as quickly as we can.

Phone : (808)-757-9485

Email : [email protected]

Website : www.healtheservices.com